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is a bittersweet season this year, as we celebrate the winter holidays
in the midst of tragic events in Newtown, CT. As an organization
dedicated to the well-being of children and their families, we can reach
out to those we know around the country who are impacted by this
tragegy. We can also work in our own communities to take steps to
ensure the safety of all children and teachers in our schools and
neighborhoods. The American Academy of Pediatrics has resources available for parents, students, and schools. You can find more information here resources to website.
MSGRC 2012-2013 Annual Meeting
MSGRC Project Highlight
this year, MSGRC received supplemental funding through HRSA to develop a
strategic plan for expanding use of family history tools in our
region. Family history can help providers determine an
individual's risk for certain diseases, both common (e.g. congenital
heart disease) and rare (e.g. Fragile X). Family history tools
offer providers and families increased knowledge about the possibility
that a condition may be passed from affected or carrier parents to a
child. Although family history has limitations, the information
ascertained from its use helps providers and families make informed
decisions about subsequent genetic testing and preventive
actions/interventions that may delay the onset of symptoms or reduce
The MSGRC project
focuses on developing a strategic plan for regional implementation of
existing prenatal and pediatric family history tools, including those
developed, under development, or supported by:
- The National Coalition for Health Professional Education in Genetics (NCHPEG),
- Genetic Alliance (GA), and
- The Genetics in Primary Care Institute (GPCI).
collaborating with these organizations and other Regional Collaboratives
on the project. Throughout the strategic planning process, we
will also explore opportunities and barriers to integrate family history
tools into the electronic medical record. To develop the Mountain
States family history strategic plan we will:
- Conduct key informant interviews with obstetricians,
pediatric primary care providers, and electronic health record vendors
to gather information on current use of family history tools, potential
barriers to using electronic family history tools, potential barriers to
integrating existing tools into the electronic health record, and
opportunities for outreach to other providers.
a regional survey targeting obstetric and pediatric providers to assess
current knowledge about family history and its use in a clinical
setting, awareness of existing family history tools, willingness to use
new family history tools, ability to integrate tools into electronic
health records, and potential barriers to implementing within the
- Conduct a focus group
session to collect information on opportunities for and barriers to
region-wide implementation of family history tools in the Mountain
States, and to identify existing financial and non-financial resources
in the Mountain States that could assist with implementation.
The final strategic plan will summarize:
- The regional goal of improving use of family history tools by obstetric and pediatric primary care providers,
- Opportunities for region-wide implementation of family history tools in the Mountain States,
- The identified barriers to region-wide implementation,
- Existing partnerships that will strengthen implementation,
- A proposed implementation plan accounting for the identified opportunities and barriers, and
- The estimated cost of implementation.
If you have
expertise in family history tools and would like to get involved with
this project, please contact Liza Creel, MSGRC Project Manager, at firstname.lastname@example.org.
so, as the days grow shorter and the nights colder, we will be thinking
of you as you gather with family and friends to rejoice in each other
and celebrate the season. Thank-you for all you have done for
MSGRC and the children and families we serve. We're looking
forward to seeing you and hearing your news in the New Year.
I. Kaye, M.D., Ph.D.
Kathryn Hassell, M.D.