Session: Genomic Technology in NBS
Aaron Goldenberg from Case Western Reserve University, Beth Tarini from the University of Michigan, and Amy Gaviglio from Minnesota have a new project funded by HRSA to assess the viewpoints of State Newborn Screening Officials regarding the integration of genomic technology into their programs. They are working collaboratively with each of the Regional Collaboratives to set up a series of phone focus groups to hear from program and laboratory officials. These sessions are approximately 1 hour long and are meant to give the States a chance to have their voices heard about the potential uses of genomics in their programs. Individuals and their States will not be identifiable in the data. Regions may be identified to show regional differences. We have set up a poll below to determine a time best for our members. We have also attached an information sheet about the project. Thank you so much in advance! We look forward to hearing from you on these important issues.
Poll Link: http://doodle.com/yw4kn8732eymgc66 (listed in Mountain Time Zone)
Webinar:Navigating the Affordable Care Act
The Catalyst Center and National Center for Medical Home Implementation will be hosting a webinar, Navigating the Affordable Care Act (ACA)- Help for families of children with special health care needs, will be held on July 20th at 1:00 PM ET. Please see below for more information on the webinar (provided by Meg Comeau).
Date: July 20, 2015
Time: 1:00 to 2:00 pm ET (12:00- 1:00 pm CT; 11:00 am - 12:00 pm MT; 10:00 - 11:00 PT)
Join us for a free webinar where experts from the Catalyst Center and the National Center for Medical Home Implementation will share information, based on recently developed fact sheets on how the following ACA provisions can help families raising children with special health care needs:
- Medicaid "wrap-around" coverage for privately insured children with special health care needs
- Concurrent care for children with life-limiting diagnoses
- Habilitative benefits in the State Health Insurance Marketplace plans
- Section 2703 Health Homes for funding care coordination