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Message from the Project Directors

Kathryn Hassell, MD & Janet Thomas, MD

 

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November 2015

The MSGRC team recently headed to DC to attend the National Coordinating Center's (NCC) Annual Project Director/Project Manager. Much of the meeting  focused on the data collected so far from the Provider and Consumer Surveys that were released as part of the National Needs Assessment. In our next PD message, we will have more updates to share with you on this work. In the meantime, please read on for a brief review of MSGRC news and activities.

 

Save the Date: MSGRC
 Annual Meeting
MSGRC would like everyone to mark their calendars for our next Annual Meeting. We will  be meeting in Phoenix, Arizona from April 14-16, 2015. We hope to again have the wonderful attendance and discussions that we have seen previous years. This year will be especially crucial in determining the future directions of the regional collaboratives and how MSGRC can best support genetic services in our eight states. We hope to see you there!
             Primary Care Survey       
Many of you are likely aware of the Genetics Provider Survey which has been distributed through the American College of Medical Genetics (ACMG). MSGRC is aware that many clinicians in primary care have a significant role in the care of individuals with hereditary disorders and has adapted the ACMG survey for those working in primary care. We hope all of our primary care colleagues  are able to complete this survey (link below) and share with colleagues. Your insight is invaluable.
Primary Care Provider Survey:
MSGRC Mapping Project

Many of the states in the MSGRC region face both provider shortages and geographic barriers that create a challenge in the provision of genetic services. In early 2015, MSGRC initiated research on the numbers and distribution of genetics providers and counselors throughout the region. The data collected and analyzed through this project underline both current barriers and possible considerations for future development of genetic services and resources targeting our frontier counties. Please follow the links to both our Project Poster and Methodologies. 

Poster

Methodologies

Final Thoughts

With the holidays fast approaching, we hope many of you are able to enjoy memorable times with friends and family. Have a wonderful Thanksgiving and we look forward to sharing many of the updates from the national meeting next month!

Warm regards,

 
             
 
 Kathryn Hassell, M.D.              Janet Thomas, M.D.
 Project Director                      Associate Project Director
   
    
MSGRC staff contact information: 
Kathryn Hassell, Project Director Kathryn.Hassell@ucdenver.edu   
Janet Thomas, Associate Project Director Janet.Thomas@ucdenver.edu
Marilyn Brown, Project Manager -303-477-1976 mbrown@mountainstatesgenetics.org 
Sharon Homan, Project Evaluator Sharon.Homan@unthsc.edu   
Joyce Hooker, Director of Social Outreach jhooker@mountainstatesgenetics.org
Kristi Wees, Social Media Coordinator           kwees@mountainstatesgenetics.org
Celia Kaye, MSGRC Consultant          Celia.Kaye@ucdenver.edu 
 
THI staff contact information:
Camille Miller, Project Administrator 
cmiller@texashealthinstitute.org 
Sherry Wilkie-Conway, Project Oversight 
swilkie@texashealthinstitute.org
Stephanie Sondrias, Events Manager 
sondrias@texashealthinstitute.org
 
 Website: www.MountainStatesGenetics.org
 
Acknowledgement
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Grant H46MC24095,The Mountain States Genetics Regional Collaborative for $600,000. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.

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