2013 MSGRC Workgroup Meetings, July 10-12, 2013 Denver, CO

Please join us for the Mountain States Genetics Regional Collaborative's 2013 workgroup meetings, to be held July 10-12, 2013 in Denver, Colorado.


Double Tree by Hilton Denver-Aurora
13696 E. Iliff Place
Aurora, CO 80014
Click here for more information: Double Tree by Hilton Denver-Aurora

Double Tree has complimentary scheduled airport transportation to and from Denver International Airport (DIA). For Airport Pick Up Call the hotel: 303-337-2800 to request pickup from the airport and ask for the expected shuttle arrival time. Click here for additional details.

Schedule of Meetings (in Mountain Daylight Time)

Meeting agendas will be available on this webpage soon

Wednesday, July 10, 2013
7:00am-8:00am Registration and Breakfast
8:00am - 3:00pm Metabolic Consortium Meeting
2:00pm - 6:00pm Health Information Technology Workgroup Meeting (Agenda)
6:30pm - 8:30pm Advisory Council Meeting/Dinner
Thursday, July 11, 2013
7:00am - 8:00am Continental Breakfast for Full Group
9:00am - 3:00pm Parent Partner Training (open to parent partners and project team only)
8:00am - 10:00am Newborn Screening Workgroups Breakouts
  1. Laboratory services
2. Follow-up
3. Point-of-care screening
10:30am - 2:30pm Newborn Screening Workgroup - Full Group Agenda
  • Newborn Screening Workgroup Minutes
  • 3:00pm - 6:00pm Emergency Preparedness Workgroup Agenda
  • Emergency Preparedness Workgroup Minutes
  • 3:30pm - 6:30pm Telegenetics Workgroup Agenda
  • Telegenetics Workgroup Minutes
  • 7:00pm - 9:00pm Networking Dinner
    Friday, July 12, 2013
    7:00am - 8:00am Continental Breakfast for Full Group
    8:00am - 12:00pm Consumer Advocacy Workgroup
  • Consumer Advocacy Workgroup Minutes
  • 12:30pm - 4:30pm Medical Home Workgroup
  • Medical Home Workgroup Minutes
  • 5:00pm-9:00pm Hemoglobinopathies Advisory Group Meeting

    Registration and Hotel Information

    Please complete your registration by June 12, 2013. Register here: https://www.surveymonkey.com/s/MSGRCWorkgroupsJuly.

    Note: If you plan to attend via conference call please go thru the online registration site and select “phone” as your attendance status for any of the workgroups you would like to attend.

    You should make your hotel reservations through the registration site, or by contacting Stephanie Ondrias directly at 512-279-3920 or sondrias@texashealthinstitute.org. Please do not call the hotel to make your own reservations. We know many of you will be traveling in and out for only one workgroup meeting, but also that some of you serve on multiple workgroups. If you plan to stay for multiple meeting, you can tell us which meetings you'll attend when you register.

    For any program related questions, please contact Donna Williams at 512-279-3919 or dwilliams@mountainstatesgenetics.org. For any hotel or travel related questions, please contact Stephanie Ondrias at 512-279-3920 or by email to: sondrias@texashealthinstitute.org.

    Reimbursement Information

    The MSGRC will reimburse all primary workgroup members, consumers, speakers, project staff, and advisory council members for MSGRC workgroup meeting-related travel costs. However, all regional and national stakeholders are welcome to attend the meeting! You can find the travel reimbursement form here. Be sure to look at the instructions sheet attached to the form for details about MSGRC reimbursement policies.