Improving Medical Homes and Transition Outcomes for Youth Served in IMD Clinics

Project Lead: Laura Pickler, MD

Project Summary

The Improving Medical Homes and Transition Outcomes for Youth Served in IMD Clinics Project has a goal to improve transition services for patients with inborn errors of metabolism (IMD). The project began by examining the transitioning needs of patients served in the IMD clinic, and the needs of their providers in both pediatric and adult care settings. In collaboration with the National Center of Health Care Transition (Got Transition?) and the Heartland Regional Genetics Collaborative, the project also participated in a pilot phase where specific transition practices are tested within the medical home. MSGRCC funding has supported pilots in two IMD/genetics clinics in Colorado. Currently, data are being collected to document the specific role of IMD/genetics specialists in providing a medical home team model of care for transitioning youth with either a genetic syndrome or inborn error of metabolism. Outcome data on their actual transition to adult care are also being collected.

Project Abstract (Coming Soon)